Posts

Showing posts with the label Gilenya

Still here. Still all the feels

 Hi all. The fam and I are still here. We have our own house now which I had hoped would give me more steps because it is bigger than where we were living but it really doesn't do that. I have discovered my max walking is about 1000 steps before I need to sit, which isn't a lot. When I push myself and require several days to recover I can walk 8k steps in one day but I pay for it for several days after. I just need to find that perfect number of steps to walk daily, spread out over the course of the day, and do that...I'm working on it. I will keep you posted. I am currently taking Gilenya (since March 2018) for MS and a lot of other medications for pain and the other lovely things that come along with MS.  I don't want to talk about the pain, I want to try and focus on progress. Let me know you stopped by or feel free to ask questions if you have any! 

It is like a tiny chemo hug in capsule form

Image
My day today was eventful. The medicine I take to try and prevent relapse is Gilenya. It works for me. It doesn't work for everyone but I have been on it before and my previous neurologist was really happy with the results so I didn't really consider any other options this time around. I didn't have any major side effects and Novartis is really great about payment assistance so it was my top pick. Today was D-day. First, let me start by saying I don't like strangers in my home. I we have a small place with minimal furniture, and because I cannot get around well and we actually live here it is never as clean as I would like. That said, JP was amazing last weekend to check off my list of to-dos to help my anxiety and try and make me feel more at ease with having company in the house. Also, I accepted the fact that I'm not trying to impress these people, nor am I likely to ever see them again. So there was that. Secondly, let me explain in super simple terms what